Today let’s tackle an idea inspired by Bennet of Your Diabetes May Vary. Tell us what your Fantasy Diabetes Device would be? Think of your dream blood glucose checker, delivery system for insulin or other meds, magic carb counter, etc. etc. etc. The sky is the limit – what would you love to see? Read the rest here
At first I thought…I’ve got the CGMS and Animas Ping I don’t really need much else. But then, I thought about it a little more. I guess my one wish (out of many) would be if my pump, meter and CGMS were all connected. I’m not exactly asking for closed loop, artificial pancreas grade communication, but there are definitely some communication improvements that could be made.
The first is that I hate calibrating my Dexcom. Sugar check then punch it into the Dex? No, why can’t the meter just send it to the Dex automatically???
Another communication problem. Sometimes I check my sugar, but I’m not ready to bolus just then from the meter remote. What if somehow the meter could send the glucose number to the pump and it could be stored on both the pump and meter (which it already does) for about 10-15 minutes? That way when the time comes around to bolus, I don’t have to think about what my glucose was just a few minutes ago and dial it in, it will already be there.
Seems simple enough, says the art major to the programmer.
Speaking of cool technology… Went to the endo yesterday. Finger stick A1c (where were you all of my childhood?!) is 7.1 Not my best, but I’m okay with it. I also saw this unit and bunch of a brochures for this bad boy:
SO FREAKING AMAZING.
I Want It All – Queen
One Thing to Improve – Wednesday 5/16 Yesterday we gave ourselves and our loved ones a big pat on the back for one thing we are great at. Today let’s look at the flip-side. We probably all have one thing we could try to do better. Why not make today the day we start working on it. No judgments, no scolding, just sharing one small thing we can improve so the DOC can cheer us on!
So here it is. My confession.
I’m terrible with site rotation. I’m a creature of habit. I only use my hips, above the belt line 3 days left, 3 days right and back again. Nothing else is comfortable. Arms burn, never had a leg site that didn’t bleed or rip out. Below the belt is out of the question because I always become super paranoid about the sites ripping out and they usually do. Comfortable real estate is limited and I always wear my Dexcom sensor. Lately, I’ve noticed my sites are dying at a rapid pace. I used to be able to go beyond day 3 without a second thought. Now by day two my numbers go a little wonky. I’ve had more leaky sites in the past few months than I’ve had in my 4 years (HOLY CRAP) of pumping. I know what I need to do. Be brave, take a little arm burning or wear dresses three days straight for a leg site. Give my hips a break, so they can continue to serve me. I guess I’ll take the plunge…literally and switch it up.
Hips Don’t Lie – Shakira
I know most of my readers are D-peeps so here’s a little D for ya:
You know that saying that bad things happen in threes? I think it really applies when you have diabetes.
The first bad thing: Towards the middle of May, my insulin pump died. It made a few weird sounds, a last goodbye song, and the screen went black. Of course this happened when my mom (who handles all the insurance/health things) was out of town caring for my grandparents and right in the middle of a terrible low. So what did I do? Made my sister call Animas to pretend to be me and order the new pump. And double of course, the back up long acting insulin I had was expired and it was a Saturday. So a phone call to the emergency number for my doctor was also required.
The second: Hershey Park, last week of May…not the dream location for any person with diabetes. The roller coasters and pumps don’t mix, so I was on Levemir with my pump for bolusing. It was raining. My Dexcom was in a double plastic baggie inside of my waterproof bag. I didn’t even ride a roller coaster. I was the driver for my group. My blood sugar stayed relatively sane for the occasion. But this event leads to number three.
Three: A few weeks ago. My Dexcom died. I suspect that day in the rain may have been the final straw. I’d definitely dropped in on several occasions before that, but who knows if a little rain snuck it’s way in. After a few emails back and forth I was back on my Dex in a few days time.
Diabetes management requires so much…management.
Other summer diabetes bits:
I’m having issues keeping my Dexcom stuck. I’ll admit I’ve been able to keep a single sensor in for 14 days in the past. But with swimming and sweating…I’m peeling by day three and the only thing that works really well (Skin Tac and medical tape) makes me itchy and red… If I switch out with IV Prep it’s better but it doesn’t last and I end up ripping the site out as I try to replace the wilting tape.
Creepy fingers are back. This isn’t even the worst they have looked this summer.
Beautiful Soul – Jesse McCartney
It’s been too long. Almost a month. I keep telling myself I need to write, but I’ve been spending most of my time enjoying my summer. Making new friends and just trying to live.
I got my associates degree! Graduated from something for the first time since 6th grade! Orientation for Scholarship University is in 2 weeks. I’m a little nervous about the transition, but I’m sure I’ll be okay.
I’m still jobless, but I’m working on it. It’s really hard with no experience real experience (quitting that awful waitressing job doesn’t count for much), and because I would rather only work for the summer. I’m hoping it will work out. I have a small lead with a friend of my mom. Cross your fingers.
My family has been experiencing a lot of health problems. My grandmother has been in and out of congestive heart failure, and we aren’t quite sure what this means. My mom has a kidney stone that requires several procedures to be removed, but it should be all cleared up by next week. Life is weird.
I have so many little diabetes updates. My pump failed. My Dexcom failed, yesterday. My A1C was 6.8 in May. I’ve lost some weight. My doctor wants me to try Metformin. All of these things are worthy of individual posts, and they are coming. I miss the community. I see you all tweeting, advocating, and writing, and all I want to do is jump back in.
Love Song – The Cure/311/Adele
It’s the perfect dress for occasions like: yelling at your dog to get out of pictures.
And look: Pump Pockets!
I hate getting dressed up. I’m just a jeans and t-shirt kind of girl. It’s even worse when you have to factor in your pump and Dexcom. I love when I find a cute dress with pockets and I think I’ve found the perfect one. It was only $27.99 at Target and I think it’s great for a multitude of occasions. I wore mine for a student panel discussion on scholarships, but I plan to wear it to an interview as well. It comes in a ton of colors, it’s flattering, and diabetes device friendly.
New Shoes – Paolo Nutini
I need to commit myself to blogging again. Even if no one is reading, it’s good for me. It’s just nice to have a log of my day to day. The ups and downs of my silly little life. I also have things I want and need to say. It’s strange, I think in posts sometimes. I witness something or take part in something, and think about how I could write about it. I just need to follow through.
- When I last blogged I was headed off to a girls weekend in NYC. It wasn’t quite the trip from hell, but I didn’t have as much fun as I would have liked. Maybe at some point I’ll post an edited version of an email I sent to a friend who couldn’t join us on the trip. It took me almost a week to recover from the stressful time in NYC.
- I had my Dexcom training on Friday, July 23. For some reason the trainer was shocked that I actually read the manual and watched the training video. Isn’t that what you are supposed to do? Each time I’ve had some sort of D related training the trainers are always amazed that I actually did my “homework”. Anyway to the point. I’m still working out how I feel about this new addition. I definitely feel part cyborg, and I’m not sure if that’s good or bad. The stupid transmitter is already falling off and I have 3 days to go. My cell phone has been banished to my purse so Sexy Dexy can sit in my spare, pumpless pocket. Yeah, Sexy Dexy. The Dex has done it’s job keeping me aware of plummeting blood sugars, but it also annoys the crap out of me. I can see how people start yell at these things or choosing not to wear them. It also really sucks to see your blood sugar skyrocket. The Dexcom is just there to shove it in your face while you frantically try anything to make your numbers come down. I have already been able to spot one trend that I was aware of without the Dex, early morning lows. Now I can see just when the numbers start nose diving and I used a temporary rate last night to wake up to these lovely results:I’ve already changed my basal rate to see if I can get a repeat performance. Hopefully this is one blood sugar problem crossed off the list. That is until school starts again. Then I’ll have a whole other set of blood sugar issues to do contend with.